Comments on: Fibromyalgia Treatment

By: Gwen

Gwen — Tue, 28 Jul 2009 01:21:19 +0000

I’m writing this in refrence to the person who said they were on morphine for Fibro. I was on morphinr for about 8 years, I was very miserable. I was on Kadian which is morphine in a time released capsul. Because I am on medicare and medicade I was told in January of this year that my perscription was no longer covered and I would have to change to the regular MS/morphine sulfate. Some folks with FM cannot tolarate a lot of meds. Due to the IBS I cannot break down the coating on the regular morphine. My Dr. changed me over to the Fetynal patch. It by passes your stomache all together.
This past week I read an artical on how Morphine has no effect on FM because folks with FM have CNS problems and it does not attach to the receptors in the brains pain signal system.
The article also stated that controlled tests on subjects with FM had great pain improvement with marijuana because it can attach it self to pain receptors in the brain.
As a 30 year FM/SLE patient most of my life sucks. I have more off days then days of acomplishment. I would be totally disabilitated without the Fetynal and marijuana. Marijuana works best in small doses so you do not build up a tollerance to it. I suggest 1 good joint smoked at 3 intervals a day, morning, midafternoon, and about 9PM.

By: Mike Brewer

Mike Brewer — Sat, 25 Jul 2009 07:15:47 +0000

I spend most all my time as a Mentor to veterans with PTSD. The number of wives of vets who have been diagnosed with PTSD who have fibromyalgia is overwhelming. This is the stuff of epidemiology and the NIH. I think it is time for the Veterans Administration to conduct some research in their ranks.

By: Linda

Linda — Mon, 13 Jul 2009 21:47:45 +0000

i hope that soon they will come up with some kind of pill or a drink of some kind that will put our pain on hold. Or maybe get rid of the pain altogether. Excerise is great, but I found out that the next day or two was hell to pay. I do alot of walking and gardening.
I also found out that our location in Oregon, plays alot into my pain. We have alot of wet and cold weather.

By: Linda

Linda — Mon, 13 Jul 2009 21:39:40 +0000

I’am still trying to live with Fibro.It has cheated me and my love ones out of there Wife, Mother, Grandma. I’ve had it for some time now. and it is no fun.I’am taking Morphine twice aday. And it keeps alot of the pain away. I still can work, but there are day’s you don’t even want to get out of bed.

By: Gwen

Gwen — Sun, 12 Jul 2009 22:40:14 +0000

I agree with Melly. Definately a lot more woman have FM and men also get it. I belive that the location as where you live in this country has a lot to do with higher numbers of folks with FM. I live on the east coast/ Cape Cod area and more woman than not have fibro. We have nasty cold winters that effect the pain Then we have rainy damp spring and half of the summer and that affects people with FM. When summer hits it comes on so hard that your body cannot adjust to the rapid change and we have more pain. I have been dealing with FM for over 30 years now and hydrotherapy, massage,acunture puncture helped for the first 15 years. Now it is so bad that i am lucky if I have 2 good days out of seven. If I were not on strong narcotics I would not be able to get out of bed, take a bath, and dress myself.

By: Lilian

Lilian — Sat, 23 May 2009 00:26:54 +0000

http://sacfs.asn.au/download/consensus_overview_fms.pdf

and

PROLOTHERAPY..

it works……………….!

By: sharon

sharon — Sat, 23 May 2009 00:14:57 +0000

I have severe CFIDS and FM. For pain nothing but Ultracet has worked for me. For my best friend with severe primary FM only heavy duty narcotics help reduce the pain to about an 8 on the scale of one to ten. She is now on Methadone and feeling much better. We both have tried everything suggested and really, only the meds have helped take the pain down. Down but never gone.
Also, although we are glad that FM is finally recognized as a real disease, it has also become a “garbage can” for doctors who can’t come up with other diagnoses. So, if you sort of fit the criteria for FM, that’s what they dump on you. I strongly suggest ruling everything out including the thyroid. Yes, FM is common but I think one out of 73 people is just a bit too high a number.

By: Cindy

Cindy — Fri, 22 May 2009 22:35:38 +0000

I spent 25 years of my life with debilitating Fibromyalgia and Chronic Fatigue, which my doctors said I would just have to learn to live with. That wasn’t good enough for me! Through much research on the internet and through medical journal articles, I was able to glean helpful knowledge that I have applied to my life. I have spent the last 25 years researching and have succeeded in overcoming 19 symptoms that had stolen my health for 25 years! I no longer struggle with ANY symptoms I had before and am currently training and preparing for an IRONGIRL TRIATHALON in July of 2010. How great it is to feel human again! I have become Certified in teaching low glycemic weight management and through my classes I help people to eat healthy (which is all part of a healthy lifestyle for anyone) and also how to apply principles of natural health in order to help them overcome
their health issues, too. It’s so exciting!

By: dseesred

dseesred — Fri, 22 May 2009 21:01:49 +0000

another not so familiar therapy and possible underlying cause is hypothyroidism. Or at the very least, thyroid hormone not functioning in the body as it should (where thyroid levels are adequate but not getting to brain and/or muscle tissue for use.) There is alot of information about this treatment and therapy in the book, The Thyroid Solution. For those that struggle with this disease, just another piece of the very complicated puzzle.

By: Melly

Melly — Fri, 22 May 2009 18:54:01 +0000

I disagree with the figure of 1 out of every 73 people. Many people have it and are undiagnosed, and women get it more often then men. I have to take painkillers, or I couldn’t function. Marijuana works good too. It’s hard to exercise when your body feels like it got run over by a Mack truck.