Strange News Stories

Sunday, May 10th, 2009

Fibromyalgia: A Chronic Pain Syndrome That Affects Six Million American People

Fibromyalgia syndrome is a disorder that may or may not exist according to some clinicians and medical researchers. Fibromyalgia may be a single clinical disease or may actually be a group of clinical predicaments with a wide range of symptoms forming a neuropsychiatric pattern.  It is a chronic pain syndrome that affects almost six million american people. Chronic means that it affects the patient for a period greater than three months. Most patients are young adult women who complain of widespread muscle pain with multiple other diffuse symptoms. Fatigue, headache, and sleep disturbances are characteristic. There are many other difficulties associated with the syndrome and include joint pain, numbness and tingling, muscle spasms and abnormal bowel, bladder and uterine problems. Sensitivity to light may occur. The muscle pain occurs on light touch and pressure to tender areas or trigger points. These are muscle-nerve bundles in the tissues which become hyper-sensitive to pressure and touch. The brain apparently becomes centrally sensitized to normal nerve signals that are interpreted as abnormal: a lower pain threshold is thought to be related to causation.

The primary condition is chronic and diffuse pain to touch. There are tender areas in the muscles. For diagnosis, 11 such areas out of eighteen defined areas must be affected. These areas are found on the top of the shoulders, neck, inside of the knees and thighs, hips, anterior chest and low back areas. They are bilateral and found in all body quadrants. There is no laboratory or blood tests that are definitive. There are other diseases that may be associated: irritable bowel syndrome, osteoarthritis, rheumatoid arthritis, and lupus, depression, and endometriosis.

Etiology is unknown but it appears that stress and trauma, both physical and emotional, and infection are related. Weather changes, automobile travel and physical activity may also increase the degree and onset of the syndrome. There is a family history so genetics are also involved. There do appear to be some definite abnormal changes in brain activity seen by neuroimaging described by medical researchers.

Treatment is based on simple analgesics for pain relief. Local anesthetic injections or simple needle placement in the tender areas may give relief. Physical therapy with cold spray (ethyl chloride) and meditation or yoga techniques have been found helpful. Massage therapy is also beneficial. Recently, some newer anti-seizure drugs have been promulgated for treatment by several pharmaceutical companies. Whether the syndrome exists as a single entity or as a group of somatic maladies, two percent of the population experiences the symptoms and recent developments offer new hope.

17 Responses to “Fibromyalgia: A Chronic Pain Syndrome That Affects Six Million American People”

Rebeca Johnston Says:

I have had fibromyalgia since 2003, and it is not “all in your head” as I was told by different doctors. My own personal philosophy regarding the onset of this syndrome is when the body has exceeded its allotted tolerance to pain. My theory is that all people with fibromyalgia have had some kind of trauma to the head, neck, or back. In my case, I had suffered several herniated discs in my lower back before developing fibro. Trust me, this is a real disease. By the grace of God, Lyrica was developed, and it is a drug for neuropathic pain. It really works to combat the body pain. Another thing that helps is heat. Sitting in a tub filled with hot water, sitting in a jacuzzi, or standing under a shower of hot water helps relieve some of the pain. Unfortunately, nothing has been developed to combat the fatigue that accompanies the pain in this disease. The best exercise for fibro is aquatics in a heated pool. Yoga and Pilates also help. Since the muscle fibers seem to bundle up and form “knots” all over your body, massage is also helpful. Of course, insurance doesn’t pay for any of the treatments that actually work, except for the Lyrica. Provigil helps with the fatigue, but you can’t take it every day because then it becomes useless. Besides that, it’s over $400/month, and insurance won’t pay for it. I am ready to try acupuncture next. There are critics out there who have the nerve to say that there is nothing really wrong with us. Really? That’s why I spent my life as a chauffeur for my kids’ athletic activities only to miss the one grand slam my son hit, to miss my daughter’s induction into National Honor Society, to miss my godfather’s funeral, etc.. My social life is past being a wreck; it’s nonexistent. How can anybody plan anything when they have no idea of whether the fibro will act up at that time? I have had to learn to pace myself and force myself to rest, even on the “good” days, knowing that if I don’t, I will crash and be bedridden for at least two days.

Bob Says:

The history of fibromyalgia should be a hint to those in question about what it is. Doctors got many complaints from post menopausal women about the aches and pains and had no name for the symptoms so the named it fibromyalgia. Certainly, the effects of age and the chemical changes that women go through at this time must contribute to the ailments. Add to this poor diet, excessive alchohol and drug consumption,and the stresses of life and voila you get fibromyalgia. Many of the health profession make fun of people who have been diagnosed with it because they think it is a normal condition based on the contributing factors.

Mary E. Schipke Says:

Hope? “WHAT” hope from relief from the unbearable, chronic, unrelenting pain and suffering??? I really want to know…..

Dawn Says:

They always leave out Lyme Disease! How about the Atrazine in the water in the Corn-Belt areas! Its sick that these so called experts have the nerve to put Depression in there as well, because you dont have to be depressed to FEEL anything, especially Pain! (Yet they say, pain CAUSES this depression…), NO , its the feelings of not being able to do what you used to enjoy in life, you have a right to feel this, and I wish the docs would stop playing games and actually do their jobs and find the REASONS for the pain you KNOW your feeling….!!!

Dr. Son Smith Says:

I was an actress and model for several years until a car accident left me in severe pain indefinitely. The medical doctors have since diagnosed me with Fibromyalgia. I went through a series of medications and treatments even epidurals. Nothing seemed to work. I said “ok God, if I have to be like this the rest of my life just take me” I could not function. I was in accute pain every single day. At the time I said my prayer to God the words ” I can feel the pain leaving my body” kept going through my head. I then realized I needed to work on myself in this new way of pain relief I had just discovered. I decided to go back to school so I could help others that were suffering from the same torture I was. I now can do things with other people, play with my dog, work out and just be a little on the more normal side. I work on myself daily and can keep my mind focused away from any pain that may come up. I do have a minimal amount on a daily basis but I can now function and continue on with my life and help others do the same. I work with everyone.

Do not let pain take over your life. You can have control over the pain and sometimes even eliminate it completely. Take back your life.If you would like more information please email me at AHABeverlyHills@aol.com.

Be Well,
Dr. Son

Danielle Says:

I have fibromyalgia. I have lived with chronic pain and fatigue, beginning in 1989 after a car accident. My neck hurt and I had all kinds of tests and scans, and fromt he neck it traveled to my back muscles, my arms, hands, legs, feet. They never found anything wrong, yet I was in pain all the time, it has progresses over the years. I never took anything for the pain due to being afraid of the side effects, then I developed a blood clot in my right axillary vein in my shoulder, and my brachial vein in my arm. I don’t live a ordinary life, but, i started working out, and at least now I have a reason for hurting. Although, yah it hurts a whole lot worse,but, I’m getting in shape, and feeling better about some things. Although, I now take arthritis tylenol and tramadol, it doesn’t really take the pain away, but, it helps headaches. There are times when I felt so bad, I didn’t even want to live anymore if this is what it is like. But, I’m also on antidepressants now, that helps. Lots of supplements.

V.B. Says:

The pain is real but the cause of the pain can be emotional, psychological. I highly suggest reading Dr. John Sarno’s book’s. He has helped millions of people become pain free.

Karin Says:

Dear Bob,

I am not post menopausal, never been drug and alcohol addicted, eat very healthy, organic foods free of preservatives, and still have fibromyalgia. I was a competitive athlete for years both in the military and outside of it. I have been hit by reckless drivers three times which injured my spine, and had a serious fall on wet waxed floors which set of four major surgeries. I have had ten surgeries from the age of 32 – 42 to fix my injuries and of course, at 44 with all of the injuries I have arthritis. When they told me that I have fibromyalgia I feel like this is not surprising with all of the pain and surgeries I have had. I never even took an aspirin until I had my first injury. Ironically, when I get my blood work done, they are amazed at how healthy I am otherwise. At 44 I do not even have the start of cataracs or menopause. I believe that if I didn’t eat well and go for walks on the days that I am not in bed from too much pain that I would be way worse off. A person has to learn to work with their disabilities and try their best to get up and get moving. It’s very challenging when you ache all over and I actually have knots the size of a dime or larger in the fibromyalgia stress points. I do believe that fibromyalgia is the brains way of saying, “I’ve had enough trauma and I’m not going to let go of this pain”. A person has to reduce their stress and be good to themselves and stop putting everyone else first and allow time for activities that they enjoy. Too many of us women put all we have into raising out kids, taking care of all of the elderly sick people in our lives and before we know it, our bodies are suffering phsyically and mentally as we are worn out. I have seen many high achievers in the doctor’s offices’ that have fibromyalgia and have worked themselves in the gound until they are ill. I also worked full-time and did college full-time when my youngest was a baby. I went for years without sleep. Sometime in your life this has to catch up to you and it’s important to not give up and keep trying to find natural things that can make you feel better. I have an infra-red sauna which works great especially where I live where it rains much of the time.

paula Says:

Thanks for mentioning Lyme Disease Dawn! Mine was not caught in time and now 20 yrs later after MULTIPLE treatments both Eastern and Western medicine based my symptoms are still nearly as bad as they were when first diagnosed. The fibromyalgia is devastating on many days, I’ve learned to tolerate it on the other days in order to function. And Bob? My diet is great, I barely ever drank (now, maybe a glass of wine a year), didn’t do drugs, and was an athlete. NOBODY wants this – it destroys your life. Right on Rebecca – I can’t count the number of milestone moments that have been missed in the last twenty years. Better days to all . . . cheers

Teri Says:

I suffered for several years with debilitating fibromyalgia pain, complete with headaches, fatigue, depression, etc. About 6 months ago, I went to a NUCCA chiropractor for treatment. I am now pain free, off all medication, and feeling like living life again. The treatment is gentle, painless, with zero side effects (and nobody paid me to say that!). I hope this information helps someone else.

Margaret Tupper Says:

We have had the best results with Sea Mussell and Hylaronic Acid with MSM. I find that many cases start with Stress or Grief…in my Mother’s case it was grief…. but also it departed as swiftly as it came after 3 long suffering years.

Rosie Says:

Hello everyone, I have suffered with fibromyalgia for 16 years now. Days that are really bad and days that I can tolerate the pain. I hate when it’s time to go to bed because I know that I won’t sleep. I, like everyone else was told that it was all in my head. I have learned to deal with it. I get up in the morning (Not wanting to) feeling like a truck hit me. I force myself to get up, go to work and do the everyday things that I have to do. I can’t afford to lay down and let it consume me. I have 10 wonderful grandchildren that I love to play with and have fun. Trust me I put on my mask and most people never know what I am going thru. It’s hard to explain to people what I go thru when they ask. No one understands. I don’t do drugs, don’t drink, no one in my family has ever had this disease I have not been in any accidents. I do have 2 hernias between the 6 and 7 vertabre on my neck. I have never tried Lyrica due to not having any insurance. When I asked how much it would be self pay I was told that the precription would cost me about 400.00. As time goes by it gets worse. I been living now in florida for 11 years. The cold, the heat, the humidity it all sucks. I have tried accupunture and that became expensive but it really didn’t do much for me. I have tried natural things and some have worked for a little while. Either way this is not going anywhere so instead of letting it rule me I have to be strong and rule it. Mind over matter. Easier said then done. I have tried everything and I am so tired of people saying this is a fictional disease. I been told (oh but you don’t even look sick, you look fine to me) Unless you are going thru it you wouldn’t know how it feels. It’s hard to want to do things with your kids, grandchildren or family and you can’t. After a while you don’t even complain anymore because everyone is tired of listening to you complain about your pain. The pain that they think is all in your head.

Danielle Says:

I’ve been diagnosed with fibromyalgia after I went to a massage therapist at the age of 18 and was taken to the Emergeny Room. The pain has been incredibly intense everyday for the last four years. As a pre-med student, I can say that it is as real as it gets. I don’t act like a 22 year old whatsoever… I can’t. Because of my age, many have told me it’s all in my head. (To Bob: I’m not post-menopausal and I don’t drink/use drugs ever. I’ve been an athlete my entire life with a good diet.) I’ve seen every kind of doctor, chiropractors, and done physical therapy. My rheumatologist is currently treating my condition with Nortriptyline. Voltaren Gel seems to really help, as well. I’ve tried Lyrica but it made me extremely sick. Sadly, nothing has taken the pain away completely.

To those out there with fibromyalgia, try to deal with it the best you can. Make an incentive to not miss out on spending time with your family. When you’re in constant pain, it’s not an easy task. And to those out there who think it’s merely a psychological disease, I really hope that chronic pain doesn’t affect you or the people you care about.

To those out there with fibromyalgia:

Lynn Says:

I have suffered from fibromyalgia for years without knowing what it was until recently. I too have pain every day of my life. I’ve been to many doctors who keep referring me for more tests and nothing ever shows up. I was wondering if any other women who have fibro also suffer from vulvadynia. This started for me a few years after the fibro. I have suffered with both of these diseases for the past 3 years and both have wreaked havoc on my marriage. Like many of you, I do a variety of things to help manage the pain but it never totally leaves.

ruby Says:

I have suffered more with extreme tenderness rather than pain. My Mother and brother both had the same symtoms, along with muscle spasms.Mine started after an auto accident that caused spinal cord edema. The one thing that has helped the most is adrenal gland boosters.I find the tiredness more disturbing than the pain.I do worry about becoming depressed, because I never speak of my symptoms, because when I did, everyone treated me as a hypochondriac, including my surgeon husband. So I push myself everyday, but am becoming so exhausted I can scarcely function.

Elle Says:

I’ve just completed reading the comments from everyone. True, Bob doesn’t have a clue. I empathize with each and eveyone of you. I was diagnosed with fibro last year and attribute the onset from a demanding career, taking care of family needs (elderly parents & a son that just can’t seem to get it together), major surgery ’06 and minor knee surgery ’07. Throw in major depression the end of ’06 that put me on disability and here I am today in a place I never thought I’d be. I’m the “strong one in the family” and this wasn’t supposed to happen. My dreams of doing things upon early retirement have been shattered. Instead of being able to continue in a lucrative career and save money to retire early, which would have happened in 2010, I am now on permanent disability. If there’s a side effect to a drug I will have it. I did find from reading comments on different websites that Ultram was a lifesaver for many. I checked side effects and had my reumatologist prescribe it. It has indeed helped with the pain intensity. I generally take 1-2 each morning (50 mg ea) to stop the onset of pain worsening; 10 mg Ambien at bedtime for sleep; supplements and fish oil – 2, 3x’s day, and Valium as needed. Acupuncture is helpful, but temporary. Low dose steroid injections help with neck, shoulders & back for several weeks. The heating pad is my friend. You take one day at a time, stay informed on treatments & new drugs, try & do whatever works for you, and believe that ‘this too shall pass’.

Isabella Says:

Bob,

You are in simple terms…as you would understand them…a twit. Perhaps a non-menopausal girlfriend whom you wouldn’t find burrowing holes in the desert earth might help. I’m being too harsh; after all they still have no cure for lazy and stupid. God help you, Bob!

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